top of page
Homepage

Medical Library

Neurofibromatosis (NF1) Resources

NF Registry

Empowering NF patients to participate in the research process and find clinical trials.

Visit Resource
Children’s Tumor Foundation

Driving research, expanding knowledge, and advancing care for the NF community worldwide.

Visit Resource
Neurofibromatosis Network

The leading national organization providing support and government advocacy for NF patients.

Visit Resource
NORD

Dedicated to individuals with rare diseases and the organizations that serve them.

Visit Resource

Pediatric Brain Tumor Education

Pediatric Brain Tumor Foundation

The world’s largest nonprofit dedicated to children and teens with brain tumors.

Visit Resource
American Brain Tumor Association

Providing support and information to patients and families while funding critical research.

Visit Resource
National Brain Tumor Society

Conquering and curing brain tumors through research and advocacy.

Visit Resource
St. Jude Together

Comprehensive resources and support for pediatric oncology patients and their families.

Visit Resource
Visit Resource
National Cancer Institute

Leading resources for pediatric cancer research and treatment education.

Patient Education

⊕

Understanding Genetic Testing

⊕

Managing Side Effects

⊕

Nutrition During Treatment

⊕

Survivorship Care

⊕

Questions to Ask Your Team

⊕

Radiation & Long-Term Effects

Find Specialized Care

Children’s Oncology Group Center Finder

🔍

NCI Cancer Center Finder

🔍

NF Clinic Network

🔍

Find Credible Medical Information

PubMed

Google Scholar

MedlinePlus

National Cancer Institute

CDC

American Academy of Pediatrics

When researching medical conditions online, always rely on evidence-based sources reviewed by healthcare professionals. These resources provide accurate, up-to-date information to help families make informed decisions.

bottom of page