Resources

Whether you're newly diagnosed or years into your journey, our resource center connects families with trusted organizations, educational materials, financial assistance programs, and support services dedicated to NF1 and pediatric brain tumors.

Medical Information

Access trusted information about Neurofibromatosis Type 1 (NF1), pediatric brain tumors, symptoms, diagnosis, treatment options, and current research. Our goal is to help families better understand their child's condition and make informed healthcare decisions.

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Family Support & Community

No family should face this journey alone. Discover support groups, mental health resources, family organizations, bereavement support, and opportunities to connect with others who understand what you're experiencing.

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Find Care & Specialist

Connect with experienced NF specialists, pediatric neuro-oncologists, children's hospitals, genetic counselors, and treatment centers. Finding the right care team can make a meaningful difference throughout your family's journey.

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Financial & Practical Assistance

Explore organizations and programs that may help with medical expenses, travel, lodging, prescriptions, meals, and other everyday needs so families can focus more on their child's care.

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