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Live Like Elias Foundation, Inc.
 

Supporting Neurofibromatosis Type 1 (NF1) and pediatric brain tumor awareness, advocacy, empowerment and research. 

A "Mom on a Mission."

Live Like Elias Foundation, Inc. was founded by Kristen Pone Dukes, a "Mom on a Mission", to honor the legacy of her only child, Elias Carter Dukes, who was diagnosed with Neurofibromatosis Type 1 (NF1) at 6 weeks old and won his battle to Diffuse Midline Glioma (DMG), a rare, aggressive pediatric brain tumor, on May 1st, 2026 at the young age of 9. 

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Signature Programs

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Champ Care Kits

Thoughtfully curated packages, delivered to children with pediatric brain tumors undergoing treatment, filled with the very things Elias enjoyed—items chosen to bring joy, warmth, and a reminder that they are never alone.

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Victory Lap Initiative

Because every step forward deserves to be celebrated. We honor the victories, big and small, of every child in the fight and who has won the fight.

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Forever 9 Fund

The Forever 9 Fund, which helps keep Elias' legacy alive, is the foundation's signature giving program. Become a "Forever 9 Partner" for as little as $9/month and help support children and families affected by pediatric brain tumors and invest in innovative research to bring hope today and a cure tomorrow. 

His Fight Continues Through Us...

Your support directly impacts NF1 and pediatric brain tumor awareness, advocacy, empowerment and research and fuels our mission to create a lasting impact in the community and abroad.

Browse our upcoming events

We'd Love to Hear From You!

Have a question about NF1 or pediatric brain tumor awareness? Interested in one our programs or research efforts? Need an advocate? Wish to share your story?

 

Elias' mission continues through your engagement. Reach out today!

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